July 2009
Just a few thoughts on :
PEIA proposed at recent board meeting that plan participants provide End of Care Directives or pay a higher premiums than those who do. Note this was at a board meeting, but is not in Plan Presentation.
Something new and very, very scary !! I wonder if anyone has ever heard of this or had it happen to them. They want to propose that we Provide End of Care Directives (Advance Directive) or pay higher premiums than those that do provide this. This should and may be unconstitutional. While most don’t disagree with someone’s right to have and End of Care Directive, many would be outraged that the insurance company wants to financially coerce us into providing the paper to them or some third party registry. They saying they’re lowering premiums for those who sign, and this won’t affect premiums of those who don’t sign, but that is untrue. This really that would mean in the long run higher premiums for those who don’t sign.
Say the difference starts at $5 per month. Have you ever known a copay, deductible, OOMP, not to raise over the years. So what’s start as $5 per month extra could go up to $10, $25 or $50 a month extra. Just this about your copays for brand name drugs not on the formularly and so called specialty drugs. Also we’re a 70 %/ 30 % plan with retirees paying 30%, and the only way to give a premium break to those who sign the directive, is have the others pay more, so something is wrong with their 70/ 30 math even if they don’t raise our premiums. They next time they compute, we won’t be getting out 70/30 match or we would all have the same premium.
Will parents have to fill these out for their children. Just retirees?? Age discrimination?? How will this affect too quick decisions on asthmatics, elderly those in the beginning stages of MS. Many serious diseases like cancer, ALS, MS, etc. give you months, and years to decide on how to handle the end stages, but insurance companies view these as expensive early on, and already charge $50 copay on many MS drugs.
Will this be like medication, starting with a $5 reduction in copays for generics, which became a $15 copay for brand name, with $50 copays for brand names not on formulary and for so called “specialty drugs,” to a proposal last year not to cover any brand name drugs not on formulary? Can we look forward to ever increasing premiums, or even loss of services or coverage for not providing End of Care Directives? Could they dictate what you have to say in it. Will they pressure physicians and family (or family through physicians) as to how to interpret them PEIA’s way? Will the insurance company not let the family get second opinions, or consult a specialist? This also puts the physician at risk if the insurance company discourages consults. Insurance companies need to quit playing doctor. Once the precedent is set that PEIA can tie Providing insurance company or third party of their choice to Providing End of Care Directive to premiums, where will it end . Once you go down this path where does it end? Euthanasia? For whom the old, the expensive, the retirees?
It should NOT be the insurance company where CEO’s make up to 124 million based on company profits, who interpret these living wills, or their flunkies or any third party entities they choose. Our Medicare Advantage plan was Coventry’s Advantra Plan, and the CEO of all Coventry made 11.3 million in 2007 in salary, bonuses, and stock options, big bonuses base on saving money at your expense. These End of Care Directives should only be interpreted by the family in conjunction with your physicians.
Once the precedent is set the even one insurance company require proof of a living will and it affects your payment, then how long until others follow suit???? Obviously, if this gets started other insurance companies will jump on the band wagon, and a lot of people will be mislead into signing dangerous broilerplate directives, that don’t protect them adequately and are wide open to interpretation, and could be misused, and more poorly worded than you would think. If we don’t stop the insurance companies now, it will be to late later.
As far as I know, no other insurance company has done this. As far as I know neither Medicare, Medicaid, VA, Federal Employees Insurance, nor any private insurance of anyone I’ve asked requires this or ties it to premiums. Seems we are some kind of guinea pig population, as I think we were also the first state to force it’s retirees onto Medicare Advantage. We did not have a choice, it was either got to Medicare Advantage or loss your supplementary insurance. If they can get way with doing this to us, they’ll try this on others. I feel that other insurance companies will follow suit if this company gets away with this. will Workman’s Comp?
The idea that an insurance company who put financial pressure on plan members to PROVIDE this directive to them, is outrageous and probably unconstitutional and unAmerican. Talk about a totalitarian dictatorship. Terms that come to mind are invasion of privacy, conflict of interest, financial coercion, draconian, unconstitutional, ACLU, violation of religious freedom, and un-American. The whole idea makes one think of 1984 (by James Orwell), Make Room, Make Room (by Harry Harrison, think Soylent Green, the movie), or Logan‘s Run.
It is definitely fodder for the ACLU and could end up in expensive supreme court litigation., thus causing PEIA needless expense. ACLU could add a number of other violations of our civil rights, and dozens or hundreds of points and arguments, plus hundreds if not those thousands of examples. Many people will raise moral, ethical legal, constitutional, and medical objections to such coercion, not to mentions all those who will raise religious objections, and complaints about religious discrimination. Others will raise invasion of privacy issues. And does not such measures discriminate against the elderly or disabled. Is the current state administration planning to request a law requiring everyone is the state to sign an advance directive??? If not should State, County, and Municipal workers be required to sign? This gives new meaning to the term public servant. What was their purpose for requiring this? How was it to be used. And how were they to save money by using it.
Anyone making an Advance Directive would want to be real careful into whose hands they put it and when. I doubt if they can legally force you to make one, or if you have one force you to hand it over to get care. But this suggestion of tying premiums to providing this is financial coercion. Some feel that this should only be trusted to a group of several relatives to decide when to hand it over to the hospital. Many feel it’s best to have it give someone medical power of attorney to interpret your wishes, so some “bean counter” won’t. One certainly wants relatives to have time to find and consult with specialist and physicians of your and their choosing. After all no one ever went to several doctors over several months or years until they finally got the right diagnosis or treatment. In an emergency or after an accident, do you really want you this to be enacted before your relatives even have time to get to the hospital and select a doctor they want or a specialist for a second opinion. Anyway this gives new meaning to the phrase – BURY IN HASTE, REPENT AT LEISURE.
They may be planning to have us store our End of Care/Advance Care Directive at a Central Repository. One national one out in California does not require Social Security Numbers, but they are optional as someone people object to giving it out. After someone sends them their living will, they are sent a special identification card with an assigned number that a physician can use to call the company and have the Advance Directive Faxed or emailed. But if the person doesn’t have the card, the hospital can order it by name and SSN, or if the person didn’t give the repository their SSN, the hospital can get it by just giving the patient’s name and birth date. How long until one John Smith is mixed with another? How many people in this country have the same name as someone else, and maybe even are about the same age. Google your name and also run it on yahoo people search, and don’t forget to use alternate spellings (especially of your first name), and nick names.
What are the chances one of the faxed or emailed forms will get enacted before the family even gets there if you are in an accident. What are the chances one John Smith’s forms will be mixed up with another John Smith’s form. Or some of the middle pages will get switched with someone else’s middle pages. After all none of us have ever be mixed up with someone else, received a bill or piece of mail that is wrong etc. Of course there will be mix ups. However, if you die because of it, you won’t be around to straighten it out.
Then what will happen over the years. Will the insurance companies dictate the wording on these directives, raise your premium even more if you don’t sign one, withhold services if you don’t sign, or drop your insurance if you don’t sign. Or maybe eventually, they won’t pay for certain services if you don’t sign one. But if they know you have a directive or even the content, will services you might want be withheld, or withheld prematurely. Eventually, will this lead to insurance companies to put pressure on your physicians and family, or on your family through the pressure the insurance company puts on the physicians. Will the insurance company or some supposed mediator or adviser presume to interpret the living will? They already withhold antibiotics on the very sick sometimes. What if you have a slow cancer, like prostate and are only in for tests and could like for years on lupron, and choke on you dinner steak? Will you not be resuscitated because technically you are terminal. How can we trust insurance companies in this. End of Care / Do Not Resuscitate Directives are very serious and every word is open to interpretation.
Apparently on average health insurance companies spend the most on health care for people during the last two years of life. Will duh! You pay your premiums for decades when you often need very little health care and then when you get sick, they want rid of us quickly. There’s a big financial incentive for insurance companies to want physicians and families to interpret the End of Care Directive as broadly as possible when is comes to withholding treatment, what is terminal or irreversible, and what is life prolonging. Where you and you family might prefer to be very cautious when enacting the End of Care.
Think you won’t be affected because your insurance company doesn’t require this? Think again. You never filed an End of Care Directive with a repository. You’re in an accident and are taken unconscious to a hospital, which calls a few repositories with you name and birth date, and a match is found, faxed, and used to withhold care. But it was only the directive of someone with the same name. Too late, R.I.P.
Help needed:
- Please post on this site if you’ve ever heard of an insurance company requiring you to Provide an End of Care Directive or pay a higher premium if you don’t.
- Also if you know of any web sites
about the dangers of misuse of Advance Directives/Living Wills, or problems with interpretation of these documents, and tips on wording them please post those site.
Sites: Below is a listing a couple of sites found in a quick search with some 2006 Federal law, and concerns about wording of this type of document, or misuse. While one might not support every word at sites they provide a lot of helpful information, concerns, and example.
For tips on writing living Wills and Advance directives, and pros and cons of language.
http://www.internationaltaskforce.org/rpt2006_2.htm#212
Before You Sign On The Dotted Line http://mysite.verizon.net/cureltd/id24.html
Good article and web site. Talks about Interpretation of End of Care Directives
Federal law about Advance Directives that prohibits requiring one as a condition of treatment. See Advance Directives, 42 CFR 489.102 (a) (3) (2006).
http://law.justia.com/us/cfr/title42/42-3.0.1.5.27.8.206.2.html
You might want to read or skim it all, but it reads in part: “489.102 Requirements for providers (a) Hospitals, critical access hospitals, skilled nursing facilities, nursing facilities, home health agencies, providers of home health care (and for Medicaid purposes, providers of personal care services), hospices, and religious nonmedical health care institutions must maintain written policies and procedures concerning advance directives with respect to all adult individuals receiving medical care, or patient care in the case of a patient in a religious nonmedical health care institution, by or through the provider and are required to: . . . (3) Not condition the provision of care or otherwise discriminate against an individual based on whether or not the individual has executed an advance directive”
“Throw Granny from the Train: The Washington Post Gives a Boost to Age-Based Health Care Rationing” Note this site has lots of great article
http://unsilentgeneration.com/category/death-end-of-life-care-and-choices/
*****They very fact that the PEIA Board even brought this up with financial incentives, would now eliminate the PEIA (any agency which they retain or with contractor any state agency) with regards to just providing people with general information about the pros and cons of and End of Life Directive, even without any financial incentives or coercion in the future, as the PEIA Board has already shown itself to have an agenda and opinion on this matter many could rightly question their ability to provide balanced complete information not affected by their perceived and demonstrated preferences. * * * * **
While many have valid reasons for personally wanting Advance Directives, these are matters best left to the patients and their families, with their doctors, and perhaps lawyers. Advance Directives are an option under the law, not a requirement. Medicare doesn’t require this nor INCO/Special Metals Retirees Blue Cross. To my knowledge Medicaid, VA, and Federal Employees Insurance do not require this. What next? Will they require this form Workman’s Comp. Will other workers in the private sector be forced to do this by their employers. Will members of the UMW have to do this????
Most generic broilerplate Advance Directives only require 2 doctors, with no mention of a specialist with regards to the part of the body involved, or a 2nd opinion of a specialist. How many times have you heard of someone going to several doctors before getting the correct diagnosis and satisfactory treatment?? It sometimes takes a few days to research a condition and get better medical care, and an Advance Directive in the wrong hands could lead to hasty irrevocable decisions. Even an murderer has a trail and appeals, and yet we still sometimes execute an innocent person. Yet it appears workers, especially retired or disabled, if a victim of too hasty a decision will not have recourse, as they will just be dead without any court of appeal. This reminds one of disposable labor, think slave, feudal serf, peon, etc.
The generic basic broilerplate Advance Directives do not cover all possible scenarios. They often include a do not resuscitate order, or a no code. You could fall in the hospital and just knock the wind out, and maybe not be resuscitated. Are they more likely to not resuscitate if your older?? You at leas need a family member present to interpret. When you sign one of these broiler plate directives you are waiving certain medical protections. While most of us do not want to be hooked up to machines for years when we are unconscious and in pain (though pain can now almost always be well controlled), the Advance Directives usually are far broader and open to interpretation, and interpreted more broadly than we would like, no matter how well written. They may be taken to mean, no antibiotics, even for hospital acquired infections, etc. Example, you have cancer, it’s terminal, but will take a couple of years, and your current quality of life is good, but you choke on food, or have an allergic reaction to the wrong medicine – Do you want to be resuscitated, or given oxygen for a day? Many MS patients live years in which the quality of their life is usually good, as they often experience long remissions. And what about asthmatics with another serious illness? We’ve all heard of healthy people who suffered and injury, went into a coma, but completely recovered after weeks in coma, even through the doctors predicted otherwise.
We all hear the horror stories of people on a ventilator for years. But did you know that life prolonging intervention can be interpreted to mean an IV? The problem with end of care directive is that there are 4 issues, parts or steps to the process plus a 5th consideration.
Disclaimer: First of all realize that everything above and below in this discussion, is just that, a general discussion and personal opinions, as are most or all web sites, and books. The only way to get a legal opinion is to go to lawyer.
The first issue is that you have to have accurate diagnosis and evaluation, not just in regards to your main illness, but also in regards to your situation and prognosis over the next couple of days. If this is not accurate, or wrongly pessimistic, then they could stop the very treatments, that could save you. In case of an accident or sudden onset of health emergency, most people would want to get it right, and that could require consults with specialist, or waiting a reasonable time to see how things go.
Second one needs lifesaving treatment. If you don’t have accurate diagnosis or treatment, then the rest of the End of Care Directive could be enacted prematurely or erroneously. Elderly people are slower to bounce back from surgery, anesthesia, or illnesses than younger one, but they do bounce back, just more slowly. Medication clears their bodies more slowly, so they are sometimes over medicated.
Many people, even healthy young ones die needlessly each year due to medical error, administration of the wrong medication, or hospital infections. A senior could go in the hospital for a broken hip, pick up a hospital infection, and maybe be considered terminal just a little more easily than a younger person. Then they pull the IV, and the prediction becomes a self fulfilling prophecy.
Step 3 is the stopping or use of life prolonging intervention..
So if steps one or two are not done correctly, then step 3 could be jumped to prematurely
Apparently the law allows an End of Care Directive that only requires one physician! (See link to web site below about this). A murder get a jury of 12 , but for granny one poor physician has to decide all on his own. Who would want that legal liability or exposure. And why for the important decision of your life would you not want a 2nd opinion. I do research to buy a car, or before starting a new medicine etc. Also consider that your attending physician at any given time in the hospital might not be your regular physician. You came in at night though ER. Your physician is out of town. You needed a specialist in a field that you had never needed before. You were traveling and are in a hospital out of town. People used to get at least 2 estimate before a car repair under insurance, but one doctor! Medicine is a science, but it’s not perfect. It’s hard. And who should pick which physician will provide the 2nd opinion, or specialist, some would want this to be their family in consultation with the doctor?
Step 4 But what is life prolonging treatment?
Who defines what is life prolonging in such a situation.
Unfortunately, some people have found that once the decision is made that someone is terminal, most everything is considered life prolonging, and only the barest palliative care is given, and even routine maintenance medicines you’ve been on for years are stopped. But there’s a big difference in not putting someone on a ventilator, and not giving routine medication.
At West Virginia Center for End of Life Care
http://www.hsc.wvu.edu/chel/wvi/resources/changes.html
The site says that the law says, “Only one physician is required to certify that the patient is in a persistent vegetative state or terminally ill on the Living Will form.”
But on something so serious most would want a second opinion, and probably a consultation with more than one specialist. Insurance companies often want you to get 2nd opinions before having surgeries such a hysterectomy, but the law doesn’t ensure you get a second opinion or a specialist consultation or two before ending the very measures that could save your life. Broiler plate advance directives don’t have this in them.
The site does have some discussion of some changes in the law, but some would feel that these changes don’t necessarily protect you.
The site states with regards to definitions and the law.
“Life-prolonging intervention has been expanded. It now includes, among other things, nutrition and hydration administered intravenously or through a feeding tube.”
What other things?
And isn’t there a world of difference between and IV and a ventilator??
Site also says that the law was modified to:
“remove the specification that death occurs “within a relatively short time.” The new definition reads as follows, “Terminal condition means an incurable or irreversible condition as diagnosed by the attending physician or a qualified physician for which the administration of life?prolonging intervention will serve only to prolong the dying process.” ”
Notice that’s or incurable OR irreversible. Why not AND.
But how imminent must this death be? Without any relatively short time limit, or specific time limit, they could stop a glucose IV.
The fifth consideration, is the Medical Power of Attorney. Someone has to be able to make medical decisions if you can’t. Say you have surgery and are still sedated and a medical emergency comes up. If you’ve names a medical power of attorney they can ask for a consult, or a specialist, or help choose between 2 possible treatments, to pick the best, or in consult with doctor and specialist, help make decisions about IV’s or more heroic measures. This is why one really needs to have long talks with their medical power of attorney and other family members etc., so they will know how to interpret your wishes in various situations. Also if you medical power of attorney for what ever reason isn’t available or can’t serve, is there a backup??
If legally possible, why not a group of two to four relatives (named by patient in their legal document) in which all have to agree that there is no hope and to stop life support, as well as the physicians, and if any one feels more information/consults are needed, or more time then the End of Directive is not enacted.
Need for an attorney: For something so serious as an advance directive, one would hardly want just what you can get in a broiler plate form. This is especially true because what is considered life prolonging is not only a ventilator, but often and IV, or maybe even and antibiotic. Many if not all prudent people would need a lawyer to help you decide such things as how this kind of generic advance directive would play out if you were 80, recovering from hip surgery, and say had a severe allergies reaction or choked on food and needed to be resuscitated.
Haste: At the public hearing today, someone with PEIA or the board gave an example, of the danger of a person being in the hospital and a relative not being located or with a living will, and that person being hooked up to a ventilator. The point being that with a living will already available, they would not have to hook them up. But why the haste to enact a living will? How can you be sure that you are terminal if no relative has had a chance to select a physician you and or they trust, or maybe even get you primary care physician or specialist. Have you never shopped around for a doctor, or had problems getting a proper diagnosis or treatment that worked? That comment by the person with PEIA and similar attitudes is just what scares some.
Some people spend more time researching the lens material for their glasses (did you know there’s a newer material 6 times stronger than polycarbonate and optically superior) than the time allowed to relatives to get information and consultation before they enact End of Care Directive, at least the way some entities interpret the directives
Who Holds the Medical Power of Attorney: Personally, I would want an End of Care Directive that doesn’t put it routinely in the hands of a third party other than family and/or my lawyer, and would not want it given routinely, to the hospital upon every admission, or every series illness, or crisis, but would want relatives to hand it over, only when they are comfortable with the diagnosis, evaluations, treatments, and second opinions that have been rendered and provided, and they truly feel all hope is gone. This to insure that it’s not misinterpreted or used prematurely.
Problems with ability to afford attorney and discrimination: Many state employees don’t earn much and don’t have extra funds for attorney and many more retirees have very little income. Yet if the provision of an end of care directive is tied to lower premiums, this very lack of income, will coerce them into signing a broiler plate directive, to save on premium. This kind of policy discriminates against the poorest, oldest, and disabled. This also in a way discriminates against women and minorities. To this day the average income for women and minorities is lower than the average Caucasian man. But as seniors earned their salaries (on which their pensions and Social Security are based) long ago, when these income differences were even greater, so due their lower income this policy is even more discriminatory. They are more likely to simply not be to afford an attorney. As usual, as with the justice system, those that are both richer may fair better, as for if they have concerns they will go to their attorneys have the best directive drawn up, the best that money can buy, and the rest of us, will try to fill in the blanks in the generic broiler directive form and hope for the best.
Dangers of Not Having an End of Care Directive:
Think you’d rather just go without an End of Care Directive. If you don’t have one you’re governed by state law. Some states require only one physician to decide. Some name the order of who, can make medical decisions in your behave, and it may not be who you would think would be automatic like a spouse, and some states say something like the doctor can appoint whoever they think is best. So you go in through a ER, and a physician who doesn’t know you or your family picks. And they don’t even have to appoint a family member. A lawyer in passing mentioned to me that WV requires just physician, and that they can appoint someone to make medical decisions, and it doesn’t have to be the closet relative or even a relative. Is this true? In any event, whatever the law is, you may not like it.
From not Being Allowed to End Treatment to Being Pressed to End Prematurely: In the past people had to fight to refuse certain types of care. People fought long and hard for this right of choice. Those that were opposed, worried about misuse of End of Care Directives. Now the pendulum seems to have swung the other way toward the opposite extreme. Not only do we have the right to refuse certain treatments, but some fell these documents are too broad and are being interpreted too broadly, and too soon. When it’s literally a matter of life and death, one should err on the side of caution. Regulations are needed to ensure patient/family decision-making and stricter guidelines are needed increase patient and family controls and ensure that too broad interpretations not used.
Most of us will never be in a brain damaging accident, where we are placed on life support and will not recover. We will get cancer, or be in end stage diabetes/liver failure, or one of the rarer chronic life ending illnesses (MS, ALS, emphysema, or advancing congestive heart failure) and we will have weeks, months, or years to make, or alter our living wills to suit our illness. It is almost impossible to make a living will to cover all possible contingencies. On the other had you could be that person with the brain injury or severe stroke. Many people have come out of a coma from which no one thought they would recover, and lived many quality years and even subsequently returns to work, or recovered from other things when not expected to. There have been people that come out of hospice and live for years.
Summary: Whether or not to have an Advance Directive, what form it takes, what wording and what loved ones will have access to it, in a private matter, and is NOT the business of insurance company bureaucrats, whom we do not know, and who work for companies whose bottom line is the bottom line. Insurance companies have said that the last 2 years are the most expensive for insurance companies. Are we as a group want to give up 2 years on average, after we worked all our working live for the state. How much more will the CEO’s and other executives of the insurance companies with PEIA contracts, get in bonuses due to this plan? PEIA should not be providing End of Care Directive Forms. Due to their suggestion about tying the Provision of an End of Care Directive to premiums, they should not be giving us advise about the pros and cons of making an end of care directive, or even referring people to groups or agencies etc. for advise. They should not be doing those things in relation to something in which they have a conflict of interest. They could easily direct to some third party that presents a point of view they like. Unfortunately, most of us (unless we are already in the final stages of a specific disease) will be faced with researching these issues though numerous sources, applying this knowledge to all possible scenarios and then unfortunately for our pocketbook, consulting an attorney, or at least making some educated choices on what to write in on a form.
End of Car Directives, Can’t live with them, can’t die without them.
Please send emails with recommended sites, examples, and concerns.